We finally got to see Kayden at 3:35. It wasnt nearly as bad as I thought. While she was hooked up to alot of stuff. The machines were compact and not as bad as I thought. And her face did not swell. She looked so peaceful sleeping.
**Disclaimer** ignore my spelling !!!
She has the heart incision, 2 drainage tubes for the "bad" blood, 2 holes for wires for the pacemaker, 3 IVS, a catheter, a breathing tube for the ventilator, and a tube to drain her stomach. She is on alot of medicines including morphine, dopamine, valaximine (Valium) and ephanifrine to name a few (of course I spelled them all wrong)
The doctor told me they have had some issues with her heart rhythm. It is beating a little off which is commen after that type of surgery. they are going to watch it and see if they need to treat it with medication.
Caitlin came to the hospital. Child life came and talked to her and explained to her about all the tubes. They are definitly overwhelming. they helped her to get ready to see her sister. Caitlin handled it pretty well, but then again the nurses covered her body (and all the tubes and wires) with a pretty pink blanket ! We have given her a camera and her job is to take pics to help document the whole thing. then we are going to make a book to show Kayden later. that way if she asks about her scar she will know exactly how she got it. It has been a good distraction for Caitlin and gives her a job to make her a prat of this whole thing. teresa has to work so she cant see her sister until tomarrow. My sister Lori took the girls to school this morning and then came to the hospital to be with us until she had to get Caitlin for school, I cant express what a relief it is to have her here ! My friend Jill came up to the hospital and waited with us too and then my friend Melissa stopped by to see us as well. We really appreciate the support and the text messages and comments. We stayed there until 6 when the PICU closed for shift change. there isnt much we can do as she is heavily sediated so they told us to go home and get some sleep. We have the most expensive babysitters we can get and need to get some sleep while we can. It has been a very long day and I am totally exhausted so I am going to bed. thank ful for the day we had and praying things continue to ge well.
Showing posts with label Caitlin. Show all posts
Showing posts with label Caitlin. Show all posts
Thursday, January 8, 2009
Tuesday, January 6, 2009
Update......
Where do I begin......
Last week my sister came to visit. I was so glad to have re-enforcements so I could sleep ! Little did i know how bad I would need them. I went to lunch for a co workers bday, and felt like I ate too much. by the time I went home I felt sick to my tummy and made a b-line for the toliet (do not pass go, do not collect $200 kind of b-line). I had horrible chills and even with a sweater and 4 blankets I was still cold. Caitlin took my temp and it was almost 102. I tried to stay away for the baby incase it was flu but I think it was food poisoning .Robert had to work and Caitlin (my hero) put on the baby carrier, announcing "this is what it is like being pregnant" and made herself dinner and ate all while taking care of Kayden so I could rest. I was in no shape to take care of anyone. Caitlin asked if she could have coke, I replied "you are being so good you can have anything but a horse" (remember she asked santa for one). then she asked "can I have choc cake" I replied "you can have anything but a horse". My sister called to tell me she was going out with a friend and then found out I was sick and said she would come back for a couple of hours. she took the baby. then my brother brought teresa home 9who was staying with my mom while she had her wisdon teeth out) since teresa was there, Lori went out and I went to sleep only to wake up and barely get to the bathroom throwing up ! Teresa sent me to bed and cleaned it up. Told Caitlin to take care of me and she took Kayden until Lori got home at 1am. The rest of the week I was scared to eat much. I think I lost a few pounds !
I got a thank you card from Jennifer in the mail (Jude mommy- not just Jude's mommy but Emily's too !) She thanked me for the frame we sent ! I dont know wehere she find the time and she wants to go back to school ! She is a true inspiration ! My new years resolution is to be more like her !!!!!! lol
And the big news......... Pre op was yesterday !!!! Surgery on thursday ! I feel good about it. I am actually more stressed about getting my work done then about the babys surgery ! After sharing the stories of Presley, Henry, Dylan, Gabi and others I feel really prepared ! Thanks guys !!!! My sister flies back Wed nite to take care of the big girls. I have notified both Teresa's and Caitlin's schools incase they show a behavior change.I have my FMLA papers in. I am ready...... I think. And at the same time I think I am scared.NOt of the surgery but of seeing my beautiful little baby like that and then thought of her on a heart/ lung bypass machine ! I wish I was more the science type and thought this medical stuff was cool instead of disquesting !!!
Last week my sister came to visit. I was so glad to have re-enforcements so I could sleep ! Little did i know how bad I would need them. I went to lunch for a co workers bday, and felt like I ate too much. by the time I went home I felt sick to my tummy and made a b-line for the toliet (do not pass go, do not collect $200 kind of b-line). I had horrible chills and even with a sweater and 4 blankets I was still cold. Caitlin took my temp and it was almost 102. I tried to stay away for the baby incase it was flu but I think it was food poisoning .Robert had to work and Caitlin (my hero) put on the baby carrier, announcing "this is what it is like being pregnant" and made herself dinner and ate all while taking care of Kayden so I could rest. I was in no shape to take care of anyone. Caitlin asked if she could have coke, I replied "you are being so good you can have anything but a horse" (remember she asked santa for one). then she asked "can I have choc cake" I replied "you can have anything but a horse". My sister called to tell me she was going out with a friend and then found out I was sick and said she would come back for a couple of hours. she took the baby. then my brother brought teresa home 9who was staying with my mom while she had her wisdon teeth out) since teresa was there, Lori went out and I went to sleep only to wake up and barely get to the bathroom throwing up ! Teresa sent me to bed and cleaned it up. Told Caitlin to take care of me and she took Kayden until Lori got home at 1am. The rest of the week I was scared to eat much. I think I lost a few pounds !
I got a thank you card from Jennifer in the mail (Jude mommy- not just Jude's mommy but Emily's too !) She thanked me for the frame we sent ! I dont know wehere she find the time and she wants to go back to school ! She is a true inspiration ! My new years resolution is to be more like her !!!!!! lol
And the big news......... Pre op was yesterday !!!! Surgery on thursday ! I feel good about it. I am actually more stressed about getting my work done then about the babys surgery ! After sharing the stories of Presley, Henry, Dylan, Gabi and others I feel really prepared ! Thanks guys !!!! My sister flies back Wed nite to take care of the big girls. I have notified both Teresa's and Caitlin's schools incase they show a behavior change.I have my FMLA papers in. I am ready...... I think. And at the same time I think I am scared.NOt of the surgery but of seeing my beautiful little baby like that and then thought of her on a heart/ lung bypass machine ! I wish I was more the science type and thought this medical stuff was cool instead of disquesting !!!
Monday, December 22, 2008
How did I forget
I have no idea how I forgot this.... Kayden was in her swing and started crying. Caitlin picked her up and went to hand her to me and Kayden threw up all over Caitlin. My hero. Caitlin said did she throw up on me ?Looked over her shoulder and said yes. I said "It's in your hair, go jump in the shower" Caitlin took off her shirt and proceeded to help me clean up Kayden in the sink. she even got a wet washcloth and wiped off the bed where some had gotten. Then cleaned up the water mess I was making and got Kayden a towel. all before she cleaned her self ! Not bad for an 8 year old. I really see her growing up alot lately. Having her litle sister around has really gotten her to take some responsibilty.Of course, it is still when she wants to- if you ask her to do something she better feel like it or expect a "in a minute". But baby steps are fine for now ~ smile
I am so tired !
Thursday Kayden got her synagis shot (to keep the RSV away !) then Friday she had a follow up with the peditrician about her ear and with the cardiologist. The peditrician said the ear looked better but wasnt cleared up and he wants to see her again 12/26. The cardiologist was upset we took her off the tube feedings and wants us to do it again. He said if she was really having problems breathing with the congestion to let him know and his arm could be bent. Well no sooner then we got home she started getting fussy and wanted to be held and patted. If I stopped she started crying. We thought maybe it was a reaction to the shot but it doesnt seem to be. I spent ALL weekend holding her and patting. And that included the nights. It wasnt too bad friday night and saturday but once sunday night came I couldnt do it anymore. I even tried letting her cry to see if she would cry herself to sleep but no good and Caitlin just got upset that I was letting Kayden cry. At one point I started crying out of pure frustration and being so tired. Caitlin took her from me and got her to stop. she gently explained to Kayden that she cant hold her all ngiht cause she would fall asleep on her and that mommy was the only one who could, so Kayden had to be good for mommy. Well, Kayden didnt listen and moved downstairs hoping sleeping in her swing would help (my hero Caitlin by my side the whole time).By almost 11 I called Robert. Now let me stop for a minute, where is Robert ??? Well, Friday night he worked a lock in and then he started his 4 on saturday (6pm- 6am until till tuesday night). So I called him and he is at IHOP eating with the guys ! Are you kidding me ? I have spent days in a recliner till my rear end hurt waiting for him to wake up at 4pm just so I can take a shower and he is hanging with the guys ! ARGH !! Anyway he came home and took her for a little and then gave her to my dad so I could sleep. I guess she fell asleep and dad put her in her swing cause that is where I found her when she woke at midnight ! then again at 2am and again at 3:30. I could barely handle it by almost 4 when I called Rob who came by and then came home early at 4:30 complaining that he was going to loose his job. My response it "good we can be unemployed together cause I am too tired to go to work" My plan was to sleep for an hour and get up at 5:30 but i slept till after 6am. I ended up rinsing off and coming into work, but I have never come in without washing my hair or putting on my make up at the office ! I called the peditrician's office as soon as they opened. they said I can try vicks on her feet and a cool mist humidifier but they could not see me today. I asked what would they even be able to do since she was too little for medicine and she said listen to her chest. She said if she has a fever over 101 or is inconsolable thke her to the ER. Ya think that is why I have held her for the past 3days ???? Day care is closed today so she is at home with her sisters. I called a minute ago and heard her in the backgroud. I asked if she was fussy and Caitlin said she was talking. So is it me ? Can she sense the frustration ? Am I the only one she does this too ?? Does she know what I went through to get her here ? She sould be good for me and fussy for everyone else ! Especially her dad who was at IHOP instead of holding her and patting her all day and night !
On a positive note : ) Jennifer (Baby Jude's mommy) got the frame we sent for Jude's baptism ! She mentioned it on her blog. I am so glad to know that it made it- I hate mailing stuff this time of year. Her strength is amazing and really lifts my spirits ! Especially on a day like today. thanks Jennifer
On a positive note : ) Jennifer (Baby Jude's mommy) got the frame we sent for Jude's baptism ! She mentioned it on her blog. I am so glad to know that it made it- I hate mailing stuff this time of year. Her strength is amazing and really lifts my spirits ! Especially on a day like today. thanks Jennifer
Monday, December 8, 2008
Here's what happened
It all started wednesday night.Kayden woke up around 2:30 throwing up, by 3:15 I woke up daddy and he said she threw up on and off until 5am. She does that sometimes and takes medicine for it but never that long. We went ahead and brought her to day care. After lunch Kristi called to say Kayden wasnt really eating and had a fever.I called the pediatrician who said take her to the hospital. So I left work and drove north, picking up Caitlin from school, stopping by the house to get the diaper bag (and something told me to grab a couple of bottled waters from the garage) and then I got Kayden. We drove to the Childrens hospital ER. When we got there they checked us in and we went to triage. Kayden wasnt too happy about leaving mommys arms for the hard scale to get weighed and started cying. While they weighed her they decided to take her temp via her bottom. That is when Caitlin walked into the room, heard her sister screaming, and the hurse shoving something up her bottom. Caitlin got upset and left the room ! We got into our room and the nurse mentioned child life for Caitlin. Shortly after the Doctor came in- she said that she suspected RSV since 8 out of the 10 kids coming in had it ! She didnt think that the shot Kayden got may have been enough in her system and that if it was RSV she wanted to admit immediatly cause the worse was still to come. GREAT I thought ! She also ordered a chest xray. The nurse came and got Kayden and I for the xray and Caitlin waiting in the room. I dont know if you have ever seen this contraption they use but it looks like something out of midevil times ! it has 2 holes for her legs and she balances her body on this small ledge between her legs then half a clear tube comes up on each side while her arms are straight up by her ears, and the tubes straps together (thank goodness Caitlin wasnt there to see that thing )When we get back to the room there is a nice guy named Matt from child life talking with Caitlin. the nurses come in to do the RSV test and Matt takes Caitlin for a walk. the rsv test is them sucking boogies from her nose and they test the mucus. Seems like forever before the dr came back with thumbs up saying RSV test was negitive. then a nurse came in to take Kaydens temp. Caitlin put both hands over the babys bottom saying "no one is touching my babys butt !!" the nurse stepped out and called Matt who came and got Caitlin again- gotta love that Matt !! child life got Caitlin some games to play to help us pass time cause the wait was forever ! We munched on the chips
I had grabbed out of my car and the bottled water I brought. I looked at the clock and it was already 7pm (we had gotten there at 3:30)A social worker came by (real nice jewish girl named rachel who had 2 boys in the 3rd and 5th grades and is divorced- can find out about someone when you are waiting that long in the ER) Anyway, I told her I need to fed Caitlin before CPs gets called on me- I wouldnt be surpsied that was my luck at the time ! So she helped me ordera pizza to the Er- who'da thunk it - I told Caitlin that all our visits to the ER growing up, I had never had a picnic in the ER before. The nurse then did a urine test on Kayden, and they were consulting the radiologist about the chest xray. Seemed like forever and it was getting later and later and I was getting really tired since it was past mine and Kaydens bed time. Eventually they told me everything came back negitive and they called the heart doctor on call who said it was okay for us to go home but wanted us in the office at 9am the next morning. We finally got released at 11:30- eight hours later- and dont think they didnt have us go to insurance first to collect their copay ! I was exhausted ! The next morning I let Caitlin sleep in. robert took Kayden to the doctor and I got Caitlin to school by 9:30 so she counted for attendance and I went to work. Robert called to say the heart doctor cancelled the surgery- I started to cry. We were so close to this being over with. they are thinking it is a virus and want us to follow up with the pediatrician on Monday and see the heart docotor again on the 19th. that is 2 weeks away ! After the appt we took her daycare.I picked her up and Krisit said her fever was 103.I waited for Robert and justlost it.I know anyone would tell us to go the ER with 103 fever but I couldnt. After being there for 8 hours and not sleeping in a couple of days I was exhausted and drained and couldnt do it. so rob called Dr Rowe (cardiologist) and he gave us some things to do and said if it got any higher to go to the ER. Well Friday nite, Saturday and Sunday- was much of the same- fever, fussing and no sleep.I tried to sleep when she slept but it was hard. I started getting sick myself and it really wore on me.I never take naps but was falling asleep any time I laid down ! Caitlin, Kayden, and I took over the living room. We put her pump next to the recliner and the swing next to that. She would start the night in the swing and then when she woke up I would move the the recliner and sleep with her there.I could hear the raspy in her chest and she sounded congested. And thrugh all this Caitlin has been my hero. she wouldnt leave the ER without her sister and she has tried to help so much. and bless her heart- the pump beeps so loud but she didnt wake up, when the phone rang this morning for Daddy to wake me she didnt wake up, but when her sister cried or started to cough- Caitlin jumped up to takecare of her. I am so glad she was here to go through all this with me. I dont know what I would have done without her. and where was daddy...... working through the night and sleeping during the day. but his 4 days off starts today so he gets Kayden duty- I just want one night to sleep all night long !!!!!
I had grabbed out of my car and the bottled water I brought. I looked at the clock and it was already 7pm (we had gotten there at 3:30)A social worker came by (real nice jewish girl named rachel who had 2 boys in the 3rd and 5th grades and is divorced- can find out about someone when you are waiting that long in the ER) Anyway, I told her I need to fed Caitlin before CPs gets called on me- I wouldnt be surpsied that was my luck at the time ! So she helped me ordera pizza to the Er- who'da thunk it - I told Caitlin that all our visits to the ER growing up, I had never had a picnic in the ER before. The nurse then did a urine test on Kayden, and they were consulting the radiologist about the chest xray. Seemed like forever and it was getting later and later and I was getting really tired since it was past mine and Kaydens bed time. Eventually they told me everything came back negitive and they called the heart doctor on call who said it was okay for us to go home but wanted us in the office at 9am the next morning. We finally got released at 11:30- eight hours later- and dont think they didnt have us go to insurance first to collect their copay ! I was exhausted ! The next morning I let Caitlin sleep in. robert took Kayden to the doctor and I got Caitlin to school by 9:30 so she counted for attendance and I went to work. Robert called to say the heart doctor cancelled the surgery- I started to cry. We were so close to this being over with. they are thinking it is a virus and want us to follow up with the pediatrician on Monday and see the heart docotor again on the 19th. that is 2 weeks away ! After the appt we took her daycare.I picked her up and Krisit said her fever was 103.I waited for Robert and justlost it.I know anyone would tell us to go the ER with 103 fever but I couldnt. After being there for 8 hours and not sleeping in a couple of days I was exhausted and drained and couldnt do it. so rob called Dr Rowe (cardiologist) and he gave us some things to do and said if it got any higher to go to the ER. Well Friday nite, Saturday and Sunday- was much of the same- fever, fussing and no sleep.I tried to sleep when she slept but it was hard. I started getting sick myself and it really wore on me.I never take naps but was falling asleep any time I laid down ! Caitlin, Kayden, and I took over the living room. We put her pump next to the recliner and the swing next to that. She would start the night in the swing and then when she woke up I would move the the recliner and sleep with her there.I could hear the raspy in her chest and she sounded congested. And thrugh all this Caitlin has been my hero. she wouldnt leave the ER without her sister and she has tried to help so much. and bless her heart- the pump beeps so loud but she didnt wake up, when the phone rang this morning for Daddy to wake me she didnt wake up, but when her sister cried or started to cough- Caitlin jumped up to takecare of her. I am so glad she was here to go through all this with me. I dont know what I would have done without her. and where was daddy...... working through the night and sleeping during the day. but his 4 days off starts today so he gets Kayden duty- I just want one night to sleep all night long !!!!!
Thursday, December 4, 2008
Letter from Santa
thought it was such a good idea that I had to share an email I got : )
If any of your children want to send a letter to Santa, send it to my office and I have a Santa Letter that the post office is doing and we can send it back to your child so they will get a personalized letter from Santa. The offices here in Arkansas are doing this, but I don't know about other states.
Rainna McGuire
Postmaster/Saratoga
1948 Main Street
Saratoga, AR 71859
She is even tweeking one for Caitlin : ) Here is the situation.... we are jewish and my daughter did not believe in Santa. In first grade the class wrote letters to santa and she told them there was no such thing. So my husband and I decided maybe she should believe so she doesnt ruin it for everyone else. so santa came that year and brought her the pink phone she asked for in the letter she wrote. Last year she wrote a letter that said "dear santa if mom doesnt get me a nintendo ds will you ?" so santa gave her a game to go
with the nintendo mom and dad gave her. we have now created a monster (see the blog with her list). So now I have to get her to take a chill pill but considering it it the same time as Kayden's surgery I dont want her to be devistated so I have asked for it to say something like it "Even though you have Hanukkah, Santa wanted to bring you a little something since you have been so good"
And then Mommy can emphasize the word "little" (meaning no diamonds $500,00 or a horse)
I know that Santa shouldnt come to her at all but I figure believing a little magic cant be that bad- she will grow up soon enough and realize that in the real world magical beings do not show up and bring gifts or money (toothfairy). We do talk about the real meaning of the holidays and she is bringing books to school for Africa and volunteering for the 4th year with blue Santa. she needs some magic in her life. and if a magical being would come and get Kayden through her surgery and make everything okay- I will believe too !!!
If any of your children want to send a letter to Santa, send it to my office and I have a Santa Letter that the post office is doing and we can send it back to your child so they will get a personalized letter from Santa. The offices here in Arkansas are doing this, but I don't know about other states.
Rainna McGuire
Postmaster/Saratoga
1948 Main Street
Saratoga, AR 71859
She is even tweeking one for Caitlin : ) Here is the situation.... we are jewish and my daughter did not believe in Santa. In first grade the class wrote letters to santa and she told them there was no such thing. So my husband and I decided maybe she should believe so she doesnt ruin it for everyone else. so santa came that year and brought her the pink phone she asked for in the letter she wrote. Last year she wrote a letter that said "dear santa if mom doesnt get me a nintendo ds will you ?" so santa gave her a game to go
with the nintendo mom and dad gave her. we have now created a monster (see the blog with her list). So now I have to get her to take a chill pill but considering it it the same time as Kayden's surgery I dont want her to be devistated so I have asked for it to say something like it "Even though you have Hanukkah, Santa wanted to bring you a little something since you have been so good"
And then Mommy can emphasize the word "little" (meaning no diamonds $500,00 or a horse)
I know that Santa shouldnt come to her at all but I figure believing a little magic cant be that bad- she will grow up soon enough and realize that in the real world magical beings do not show up and bring gifts or money (toothfairy). We do talk about the real meaning of the holidays and she is bringing books to school for Africa and volunteering for the 4th year with blue Santa. she needs some magic in her life. and if a magical being would come and get Kayden through her surgery and make everything okay- I will believe too !!!
Tuesday, December 2, 2008
Created a Monster ! Or a Queen in training
Caitlin gave me her holiday wish list.... (are you ready)
1. laptop
2. ipod
3. diamonds (after all, they are a girls best friend)
4. 500,000 "dollers" (does Santa bring money ? )
5. jewelry (guess diamonds dont count)
6. make up
7. real live horse
I know the apple doesnt fall far from the tree ! So is she just a princess in training or have I created a monster ~ smile
1. laptop
2. ipod
3. diamonds (after all, they are a girls best friend)
4. 500,000 "dollers" (does Santa bring money ? )
5. jewelry (guess diamonds dont count)
6. make up
7. real live horse
I know the apple doesnt fall far from the tree ! So is she just a princess in training or have I created a monster ~ smile
Monday, December 1, 2008
Kayden's new tricks
Tuesday 11/25,Kayden discovered putting her lips together and blowing - kinda like a rasberry without the tongue. It was cute listeding to her make the little noise until she started doing it right after she drank from her bottle ! Then look out it was flying milk ! Not so cute ! Then last night I watch ed her holding her paccy. Not that big a deal, she has done it before, usually she holds it- pulls it out of her mouth and then gets upset. this time she was finding it and somewhat getting it back to her mouth ! Everytime she took it out and then managed to get it back in,mommy would clap and say "yeah Kayden". I found this small trivial accomplishment and a foreshadow that the future would be fine. Being delayed in things this small task she figured out gave me peace that the she will be just fine !
she is also getting very fussy lately ! Daddy says she has her witch switch on ! It was on alot this weekend !
Caitlin is star student this week ! go Caitlin ! She had to do a poster to bring to school this week and a couple of trophys and a tiera. Hopefully Daddy or I can have lunch with her.
she is also getting very fussy lately ! Daddy says she has her witch switch on ! It was on alot this weekend !
Caitlin is star student this week ! go Caitlin ! She had to do a poster to bring to school this week and a couple of trophys and a tiera. Hopefully Daddy or I can have lunch with her.
Tuesday, November 25, 2008
Jeanette this one is for you
Jeanette shared a story about Anthony saying camel squash for camouflage. Caitlin has done that before when she doesnt know a word, she will replace it with something that sounds the same but using words she knows. Well, she did it again. She asked me if I had any (muffled noise). I said what ? She repeated it again. I said try again. She she said it slowly and emphasised the letters like I had a hearing problem. "Do you have any virginia winnies" Virginia winnies ????? OH ! Vienna sausages !!!!! lol Virginia- vienna- close enough ! Wimmies- sausages- sme thing.
Crying over spilled egg
Kayden slept last night- YEAH !! She had not slept the past two nights. Not sure if this is the miricle but we used the humidifier last night - I can only pray that is what the cure was ! There are not too many more sleepless nights I can deal with. Then this morning she was so fussy ! I got so stressed trying to keep her from fussing while I get ready for work ! And on top of that, I put her in the swing, stepped away for a minute, and when I came back to check on her - she had pulled out her NG tube !! Which she is doing more of lately. Hopefully we wont need it after her surgery cause I think she is sick of it. It seems like almost daily she is pulling it out !
Caitlin had her science night last night and we built an egg drop. Her worked awesomely until the people running it decided to use hers for a demonstration. It would have been a honor until they didnt put the egg in it all the way and the egg broke cause yolk to get all over it ! Caitlin started to pout and I blurted out "we can take it home and wash it" what was I thinking ? By the end of the evening Caitlin agreed to give it a new home in the trash ! thank you !
Caitlin had her science night last night and we built an egg drop. Her worked awesomely until the people running it decided to use hers for a demonstration. It would have been a honor until they didnt put the egg in it all the way and the egg broke cause yolk to get all over it ! Caitlin started to pout and I blurted out "we can take it home and wash it" what was I thinking ? By the end of the evening Caitlin agreed to give it a new home in the trash ! thank you !
Tuesday, November 18, 2008
We have a date !
First I want to say that I spent half of Friday trying to push through Kaydens synagis appt ! I think they just dropped the ball and didnt want to admit it ! The Drs office gave me a load of crap that my primary Dr wouldnt get the referral ! I know better ! Anyway after me throwing fits- we now have it scheduled for Wednesday ! I am not taking any chances of her getting sick. especially cause Teresa is staying home for school today cause she feels sick !
So Caitlin is on her antibiotic for her tooth and it is scheduled to come out on Thursday. Well, she goes to a party Saturday and comes running home, she had eaten a piece of fruit and it pushed up her tooth and made her loose tooth worse ! She ends up calling our friend Jill to come over and pull it- cause after all, Mommy doesnt do that sort of thing ! Jill comes, tooth comes out ! YEAH !!!! except the excitement didnt last long... the tooth fairy didnt come : ( Guess she was just too tired. With a little help she made it the next night and everything is good in the world again. She even left a note saying sorry ! Then Caitlin has the nerve to do a handwriting analysis on the note ! She is definitely going to be a hand full !
So yesterday was our appt with the surgeon. I REALLY like him ! After talking to Kele, I took a list of questions, after asking a couple he asked me "how am I doing ?" She here is the nitty gritty..... He said (btw, his name is Dr Fox) that our of all the scenarios- hers is the best !YEAH !!! He is going to cut her open and open her breat bone (with a saw- I asked if he was going to break it- it made it sound much nicer- although there is no nice way to tell you her breast bone will be held together with wires for the rest of her life ! But he did say the wires wont set off the metal detectors) and repair the atrial septum and ventricular septums ( the walls) and then the mitro valve and tricuspid valves. He thinks it will take about 4 hours for the surgery (his part) but the other things could take 30 minutes to 2 hours. The ventricle septum is real close to a "conductor" and there is a chance he could get to close and then she would need a pacemaker. I little scary to think about ! I am soo glad that I had talked to Kele and Heidi- it game me a good idea what to ask and what to expect so it wasnt such a blow to hear it all from him. Knowing that Presley, Henry, and Zoey have all been through it is so reassuring !So he said "lets pick a date" then he asked "how important is Thanksgiving to your family?" what ? that fast ? no way ! thinking of the other kids I wanted it as close to xmas break as possible so it didnt interfer with school but far enough that she would be home for the holidays. We picked thursday December 11th. I have to call today or tomarrow to schedule her pre op which could take 3-4 hours- fun !
Then I got home and had a "come to jesus" meeting with Teresa. I know she is a teenager but I really need her to straighten up so we can focus as a family on Kayden and not be distracted by her behavior. Besides her grades (2 c's and a f)I discovered yesterday morning that she had taken my phone and text a guy from 10:30 ish to around 11. I found out cause yesterday morning my phone vibrated- I knew I hadnt put it on silent, looked at it and there was a text. I looked in outgoing texts and there was nothing there so I text back and asked who was this. The reply was "Teresa, it's will" I confronted her and she tried to lie but eventually told me that she had used my phone and went in and deleted the texts she sent and put the phone on vibrate. then I find out that when she babysat she asked to use the computer to look up stuff for school- yeah right she got on myspace and facebook and was talking to boys. We discussed that she lied to the parent and how can they trust her with their most valuable possession (their child) but cant trust her with the computer. She is a little embarrassed so hopefully it wont happen again. We also talked about what is going to happen to Kayden and that at her age she needs to step up to the plate and help rather that distract and cause stress because she is sneaking around and lying ! Hopefully we got through to her !
So Caitlin is on her antibiotic for her tooth and it is scheduled to come out on Thursday. Well, she goes to a party Saturday and comes running home, she had eaten a piece of fruit and it pushed up her tooth and made her loose tooth worse ! She ends up calling our friend Jill to come over and pull it- cause after all, Mommy doesnt do that sort of thing ! Jill comes, tooth comes out ! YEAH !!!! except the excitement didnt last long... the tooth fairy didnt come : ( Guess she was just too tired. With a little help she made it the next night and everything is good in the world again. She even left a note saying sorry ! Then Caitlin has the nerve to do a handwriting analysis on the note ! She is definitely going to be a hand full !
So yesterday was our appt with the surgeon. I REALLY like him ! After talking to Kele, I took a list of questions, after asking a couple he asked me "how am I doing ?" She here is the nitty gritty..... He said (btw, his name is Dr Fox) that our of all the scenarios- hers is the best !YEAH !!! He is going to cut her open and open her breat bone (with a saw- I asked if he was going to break it- it made it sound much nicer- although there is no nice way to tell you her breast bone will be held together with wires for the rest of her life ! But he did say the wires wont set off the metal detectors) and repair the atrial septum and ventricular septums ( the walls) and then the mitro valve and tricuspid valves. He thinks it will take about 4 hours for the surgery (his part) but the other things could take 30 minutes to 2 hours. The ventricle septum is real close to a "conductor" and there is a chance he could get to close and then she would need a pacemaker. I little scary to think about ! I am soo glad that I had talked to Kele and Heidi- it game me a good idea what to ask and what to expect so it wasnt such a blow to hear it all from him. Knowing that Presley, Henry, and Zoey have all been through it is so reassuring !So he said "lets pick a date" then he asked "how important is Thanksgiving to your family?" what ? that fast ? no way ! thinking of the other kids I wanted it as close to xmas break as possible so it didnt interfer with school but far enough that she would be home for the holidays. We picked thursday December 11th. I have to call today or tomarrow to schedule her pre op which could take 3-4 hours- fun !
Then I got home and had a "come to jesus" meeting with Teresa. I know she is a teenager but I really need her to straighten up so we can focus as a family on Kayden and not be distracted by her behavior. Besides her grades (2 c's and a f)I discovered yesterday morning that she had taken my phone and text a guy from 10:30 ish to around 11. I found out cause yesterday morning my phone vibrated- I knew I hadnt put it on silent, looked at it and there was a text. I looked in outgoing texts and there was nothing there so I text back and asked who was this. The reply was "Teresa, it's will" I confronted her and she tried to lie but eventually told me that she had used my phone and went in and deleted the texts she sent and put the phone on vibrate. then I find out that when she babysat she asked to use the computer to look up stuff for school- yeah right she got on myspace and facebook and was talking to boys. We discussed that she lied to the parent and how can they trust her with their most valuable possession (their child) but cant trust her with the computer. She is a little embarrassed so hopefully it wont happen again. We also talked about what is going to happen to Kayden and that at her age she needs to step up to the plate and help rather that distract and cause stress because she is sneaking around and lying ! Hopefully we got through to her !
Wednesday, November 12, 2008
Sugery coming fast
So I called the surgeons office to make the appointment. she asked me when I wanted the surgery, I replied "I didnt know it was up to me!" She said that once we make the initial appointment, surgery will be within 30 days of that appointment. YIKES ! Its coming fast ! We have out appointment on Monday ! I took Kayden to have her pictures done before her surgery- it took forever. Iw ill try to post the pics when I get more time. It took an extremely long time and the camera flash wasnt working very well. I called Sears today and they are sending me some coupons for some new pics.
I also spoke with Kele whos daughter Presley had heart surgery. I find it comforting to talk to people who have already been though this type of thing. It gives the feeling that everything will be okay and that we are not so alone.
On top of everything, Caitlin cracked a tooth and the piece fell out. she now has to have the tooth pulled. Robert took her and I asked him if he scheduled the follow up appointment. He said he was lucky to get out with his life- Caitlin was that upset. She actually left the office and was waiting for him downstairs in the lobby ! By the end of the evening,I had her somewhat agreeable to it but I am sure that will all change once it is time !
I also spoke with Kele whos daughter Presley had heart surgery. I find it comforting to talk to people who have already been though this type of thing. It gives the feeling that everything will be okay and that we are not so alone.
On top of everything, Caitlin cracked a tooth and the piece fell out. she now has to have the tooth pulled. Robert took her and I asked him if he scheduled the follow up appointment. He said he was lucky to get out with his life- Caitlin was that upset. She actually left the office and was waiting for him downstairs in the lobby ! By the end of the evening,I had her somewhat agreeable to it but I am sure that will all change once it is time !
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