Jeanette this one is for you

Jeanette shared a story about Anthony saying camel squash for camouflage. Caitlin has done that before when she doesnt know a word, she will replace it with something that sounds the same but using words she knows. Well, she did it again. She asked me if I had any (muffled noise). I said what ? She repeated it again. I said try again. She she said it slowly and emphasised the letters like I had a hearing problem. "Do you have any virginia winnies" Virginia winnies ????? OH ! Vienna sausages !!!!! lol Virginia- vienna- close enough ! Wimmies- sausages- sme thing.

Crying over spilled egg

Kayden slept last night- YEAH !! She had not slept the past two nights. Not sure if this is the miricle but we used the humidifier last night - I can only pray that is what the cure was ! There are not too many more sleepless nights I can deal with. Then this morning she was so fussy ! I got so stressed trying to keep her from fussing while I get ready for work ! And on top of that, I put her in the swing, stepped away for a minute, and when I came back to check on her - she had pulled out her NG tube !! Which she is doing more of lately. Hopefully we wont need it after her surgery cause I think she is sick of it. It seems like almost daily she is pulling it out !

Caitlin had her science night last night and we built an egg drop. Her worked awesomely until the people running it decided to use hers for a demonstration. It would have been a honor until they didnt put the egg in it all the way and the egg broke cause yolk to get all over it ! Caitlin started to pout and I blurted out "we can take it home and wash it" what was I thinking ? By the end of the evening Caitlin agreed to give it a new home in the trash ! thank you !

Kayden sick

Well I havent gotten much sleep the past 2 nights.Kayden isnt feeling well. I am taking her to the Dr this afternoon. didnt want to go into a long holiday weekend sick. I am very excited to report that Zoey is home- she still needs everyones prayers to keep them coming ! Yesterday Caitlin and I made 15 pies and an egg drop. We are trying out her egg drop at science night tonight.I will report how well we did. We spent most of the weekend getting the house ready for thanksgiving. Our last big thing before Kaydens surgery. thank goodness nothing too exciting to report ~ smile.

Caitlins tooth is out and Kaydens pre op is in !

So Robert is working the wacky schedule of 4 days on and then 4 days off. So when he is working I am on my own at night and then he sleeps for most of the day. He is on his "offs" right now so he tells me we should take turns at night with Kayden. So in 8 days I get her 6 and then he gets her 2- or in a 12 day period I get her 10 and he gets her 2. Is it just me- or does that not really sound fair ?????

Kayden got her synigais yesterday- Daddy took her- afterall I took her for her 4 month shots. I am not sure if it is connected but she was up alot last night- tossing and turning and crying..... After a while I couldnt any more and woke up Robert. It only seems fair since I had to work today and he is off. He said she kept wanting to play and it seemed like she was waking every hour ! He said he was going to nap today ! Must be nice. I never get to nap during the day when I am up with her at night.

Caitlin went to the dentist and had her tooth pulled. Daddy got to take her to that ...lol (that's fair right..lol) She got there and refused to allow them to touch her unless mommy was there (awwww- how sweet).So they gave her gas to relax and out the tooth came. they also pulled a tooth in the front that was loose and had to come out because the big one was coming in. So, 2 teeth for the tooth fairy tonight. She better come- it wouldnt be right for her to be late twice in a row ! (see previous post). But Daddy is home tonight so I have a feeling she wont miss her visit this evening !

We have scheduled Kayden's pre-op for Monday Dec 8th. They said plan for 3-4 hours for the appointment. I am so excited, I can not express it ! Just how I want to spend my day.I have so much to do before her surgery. I am staying extremely busy at work to get everything done so I can be out. I have applied for FMLA and for sick leave pool. It is pretty hard to get but under the circumstance I think I have been approved ! That is a relief. I also have my sister coming in. She already got her ticket. She comes in the night before and will be able to get the big kids to school and then come hang with us at the hospital and then will pick up the girls and bring them to the hospital afterwards. We have tried to start explaining to Caitlin what to expect and how her sister will look. Of course miss drama queen got so upset that she refused to let her sister have the surgery. It has sunk in and she is handling it better now. Lori will stay for the weekend and then fly home. she will come back for the holidays about the time Kayden gets out of the hospital.

We have a date !

First I want to say that I spent half of Friday trying to push through Kaydens synagis appt ! I think they just dropped the ball and didnt want to admit it ! The Drs office gave me a load of crap that my primary Dr wouldnt get the referral ! I know better ! Anyway after me throwing fits- we now have it scheduled for Wednesday ! I am not taking any chances of her getting sick. especially cause Teresa is staying home for school today cause she feels sick !

So Caitlin is on her antibiotic for her tooth and it is scheduled to come out on Thursday. Well, she goes to a party Saturday and comes running home, she had eaten a piece of fruit and it pushed up her tooth and made her loose tooth worse ! She ends up calling our friend Jill to come over and pull it- cause after all, Mommy doesnt do that sort of thing ! Jill comes, tooth comes out ! YEAH !!!! except the excitement didnt last long... the tooth fairy didnt come : ( Guess she was just too tired. With a little help she made it the next night and everything is good in the world again. She even left a note saying sorry ! Then Caitlin has the nerve to do a handwriting analysis on the note ! She is definitely going to be a hand full !

So yesterday was our appt with the surgeon. I REALLY like him ! After talking to Kele, I took a list of questions, after asking a couple he asked me "how am I doing ?" She here is the nitty gritty..... He said (btw, his name is Dr Fox) that our of all the scenarios- hers is the best !YEAH !!! He is going to cut her open and open her breat bone (with a saw- I asked if he was going to break it- it made it sound much nicer- although there is no nice way to tell you her breast bone will be held together with wires for the rest of her life ! But he did say the wires wont set off the metal detectors) and repair the atrial septum and ventricular septums ( the walls) and then the mitro valve and tricuspid valves. He thinks it will take about 4 hours for the surgery (his part) but the other things could take 30 minutes to 2 hours. The ventricle septum is real close to a "conductor" and there is a chance he could get to close and then she would need a pacemaker. I little scary to think about ! I am soo glad that I had talked to Kele and Heidi- it game me a good idea what to ask and what to expect so it wasnt such a blow to hear it all from him. Knowing that Presley, Henry, and Zoey have all been through it is so reassuring !So he said "lets pick a date" then he asked "how important is Thanksgiving to your family?" what ? that fast ? no way ! thinking of the other kids I wanted it as close to xmas break as possible so it didnt interfer with school but far enough that she would be home for the holidays. We picked thursday December 11th. I have to call today or tomarrow to schedule her pre op which could take 3-4 hours- fun !

Then I got home and had a "come to jesus" meeting with Teresa. I know she is a teenager but I really need her to straighten up so we can focus as a family on Kayden and not be distracted by her behavior. Besides her grades (2 c's and a f)I discovered yesterday morning that she had taken my phone and text a guy from 10:30 ish to around 11. I found out cause yesterday morning my phone vibrated- I knew I hadnt put it on silent, looked at it and there was a text. I looked in outgoing texts and there was nothing there so I text back and asked who was this. The reply was "Teresa, it's will" I confronted her and she tried to lie but eventually told me that she had used my phone and went in and deleted the texts she sent and put the phone on vibrate. then I find out that when she babysat she asked to use the computer to look up stuff for school- yeah right she got on myspace and facebook and was talking to boys. We discussed that she lied to the parent and how can they trust her with their most valuable possession (their child) but cant trust her with the computer. She is a little embarrassed so hopefully it wont happen again. We also talked about what is going to happen to Kayden and that at her age she needs to step up to the plate and help rather that distract and cause stress because she is sneaking around and lying ! Hopefully we got through to her !

Sugery coming fast

So I called the surgeons office to make the appointment. she asked me when I wanted the surgery, I replied "I didnt know it was up to me!" She said that once we make the initial appointment, surgery will be within 30 days of that appointment. YIKES ! Its coming fast ! We have out appointment on Monday ! I took Kayden to have her pictures done before her surgery- it took forever. Iw ill try to post the pics when I get more time. It took an extremely long time and the camera flash wasnt working very well. I called Sears today and they are sending me some coupons for some new pics.

I also spoke with Kele whos daughter Presley had heart surgery. I find it comforting to talk to people who have already been though this type of thing. It gives the feeling that everything will be okay and that we are not so alone.

On top of everything, Caitlin cracked a tooth and the piece fell out. she now has to have the tooth pulled. Robert took her and I asked him if he scheduled the follow up appointment. He said he was lucky to get out with his life- Caitlin was that upset. She actually left the office and was waiting for him downstairs in the lobby ! By the end of the evening,I had her somewhat agreeable to it but I am sure that will all change once it is time !

On the way

So Friday at 4:37 I got a call from the heart doctor's office telling me that Dr. rowe took Kayden's situation to "conference" where all the heart doctors and surgeons meet to discuss her case. It was decided that she is ready to have the surgery ! I call the surgeon this week to set up an appointment and meet with him ! It is exciting since we have been waiting for this, but at the same time very scary !! The kids dont even want it discussed ! I am now trying to get everything done so I can take time to be with her for her surgery and not have to worry about things that need to be done ! Pray for us ! And once we meet with the surgery I will post the info !

Do you know what time it is ?

First I am going to start this by saying, I spoke with the Drs office yesterday and they are getting Kayden a referral for synagis. The Doctor is concerned that she could get RSV so he wants her on the shots to try and prevent it, or make it mild if she does get it. They sent the referral and now it is a waiting game to wait for the doctor to call and make an appt, to wait for the insurance to go through, to wait for the medicine to be ordered. I hate wainting..........

This morning at 3am- yes, I said 3 am, I woke up to hearing Kayden sucking her hand. She doesnt suck her thumb, she sucks the outside of her hand, more like her nuckle- so it is not quiet. She was wide awake and sucking away ! I tried to tell her that this was considered night time and she needed to go back to sleep- I dont think she understood me, or she was just ingoring me like the other kids in the house ! I didnt get much sleep after that and now I am yawning non stop ! I am sure that Kayden is now sleeping away while I am sufffering through work- so not fair !

What a night

Teresa leftthe ball for the hamster on her cage. She must have crawled up the cage during the night and pushing with her nose, pushed it right off ! It fell down the stairs and crashed on the floor and woke up Robert ! Better him than me !

Spoke too soon ! I heard Kayden caughing so I woke up, the tube was half out and I was concerned about where the formula was going soI pulled it all the way out, next thing I know, she is throwing up ! I clean her up but can't calm her down so I go to get robert.Next thing I know, Caitlin walks in saying Daddy sent her-it was 4 in the morning so I sent her back to bed ! Robert helped calm her down and went back to the other room. A little later I wake to Kayden throwing up. this time I wasnt fast enough and she threw up all over the bed, her and in her hair ! I yell for Rob to come help since I was running out of hands. Now today I am dragging from not getting a good nights sleep ! Incase you are wondering, Kayden took a shower with Daddy this morning so she is all nice and clean ! no more throw up in her hair ! lol

Kaydens Dr visit

Robert took Kayden to the Doctor today. Little disappointing as she only gained 4 ozs. But the Doctor is taking her case to confrence on Friday and next week we are to call the surgeon's office to meet him. Starting to feel like her surgery will be in the near future ! I called the primary doctor to get the referral already- don't want to wait until the last minute! It's begining to get scary.

Trick or treating

Trick or treating is a lot of work ! Sure can make a girl tired !

Here is the gang ! Vampire Teresa, Ball player Molly (Teresa's friend), Rock star Caitlin, and Pumpkin Kayden !!!

Little wonders

I fiured it out ! YEAH me !
Click on this link- it will truely touch your heart !
And send all the prayes you can their way ~! They need everything they can get !

Getting started

I stearted searching the internet to learn more about Kayden's surgery. What I actually did was learn about other people as I entered the blogging world ! I have found so many others who have been through the same surgery and come out fine ! Their strength has given me strength in what we are about to go through. It has also allowed me to meet some wonderful people. And I now have an increased hope for the future.

Reading a blog written by another mommy about her daughter who is going through so much more than I can start to comprehend- she asked for people to put a link on their blogs so that her daughter's story can be shared and they can receive more prayers ~ how can I say no ? So instead I started a blog to add her link. ?Now the question is ?? Can I figure out how to do it ? lol