Last week I had been in a funk. It was one of those really bad weeks. I can not stand when people make assumptions. I dont like when people are in supervisory roles and have not idea how to be a supervisor. And sometimes, I dont like having to be PC and unable to express everything cause this blog is not private and anyone can read it. And lastly, I hate that I dont play the lottery, cause I really need to win so I can just quit my job !
Okay, off the soap box. On the positive note, I got to have lunch with a friend I hadnt seen in a while and it was fun to hang with another mom. and Friday Robert was off and we got to spend some quality time together- that was nice. Saturday we went to a potty training class. YES, I know Kayden is a little small to start that but you never know when they will have these things, so I would rather attend early and store the info then miss out completely and then they wont have another one until after that fact (seems to be the story of my life). that afternoon,robert took Kayden and Caitlin to a friends birthday party. this was Kayden's first party ! I was bummed to miss it but I had to get Teresa ready for prom ! Everyone liked her hair and asked who did it. Which made me feel so good cause it was me : ) I took Teresa and her date to a friends house where they were going with a nother couple and the other girls parents arranged for a car (hummer). To make a long story short- the guy driving the hummer was an old boyfriend...lol After I got her off, I took Caitlin to the movies and we saw Hannah Montana. I sat there in the theater thinking... I can not remember when I sat still for 2 hours. I really liked the movie and LOVE her new song the climb. If you have not heard it yet, go google the words. It really hits home and yes,...... I cried watching Hannah Montana ! On Sunday we got some things done and Teresa addressed her graduation invites. My fault but I didnt pay attention when I gave her the envelopes.She didnt realize there were 2 sizes and you only address the outer ones... well, I spent most of the day trying to fix it and thing who didnt need 2 envelopes..lol Cathy came over last night. i am sad to say that she broke up with her boyfriend saturday. We liked him, but as i told her, you dont stay with someone just cause your family likes them. If you know Cathy, you wont be surprised to hear she already has another love interest. GOSH these girls kill me sometimes.
Monday, May 4, 2009
Thursday, April 23, 2009
I am lossing it !
I have to take a minute to blog because I am loosing it ! I know it doesnt help that I havent slept all night long in who knows how long.Kayden allergies are really bothering her- poor baby. I brought it up with the ENT last friday and asked if he would look in her nose. He told me she has a small nasal passage and he recommended a nose spray called xclear. This week things have gotten worse and she isnt really sleeping at night (which means neither am I). Last night was even worse and she couldnt even talk a bottle cause she couldnot breathe- greatsince she is laready under weight !. so I called the family dr this morning- who was full and said for her to see the PA. dont really feel comforatable with that since Kayden has a medical history. So I called the ENT and waited and waited and waited and waited (you get the picture) . So I called after lunch and get his nurse. Who said he says to use the spray ! Well- that $12 spray doesnt do crap (in my husbands terms). She informs me that in light of her heart issues the ENT doesnt want to see her and that we wants me to take her to the family dr ! yep- the one who cant see her either !! So the ENt doesnt want to see her with her medical history and I dont want her to see the Pa for the same medical history and the family dr is too busy ! ARGH !!!!!!! So I call another Dr ofc and they say we cant be seen until the 30th ! Heaven help me ! So if something doesnt break soon (and i wasnt referring to me- which is actually what is going to break around here) I guess we will be headed to Dell !!!!!I am seriously forwarding my mail there ! I told the hospital that on friday and they said they would save it for me when I wasnt there. So you may now contact me c/o the local childrens hospital where i seem to spend most of my life !
Monday, April 20, 2009
Hi Ho -its off the hospital we go
Friday, Kayden had to go back to the children's hospital for the testing on her ears.The rain was horrible and I never thought we were going to make it. It should have taken me 30 minutes but it ended up taking me an hour and a half ! The final verdict was the right ear is fine but the left ear has a mild hearing loss. Not a nerve issue possible because of the shape of her inner ear or because of fluid, but because of the shape they cant see in well enough to see her ear to know so we wait and watch and see what happens !
I took Teresa on Saturday yo get her hair fix (still from the damagethis summer from her mom) and then sunday we did senior pics ! Kinda scarey to see her in a cap and gown.I gave her an early graduation present which was a silver necklace that has 3 rings (mother, daughter, friend) and the card that came with it said something like " a daughter is a little girl who grows up to be your friend" and then something about when you wear it remember what you mean to me. she started crying - it touched me that my necklace meant so much. I was hoping it would and I was glad it did.
We went to a picnic at the park this weekend with some friends ! It was so nice out and so relaxing - we never get to relax anymore. We definitly have to do it more often.
I tried to add some of Teresa's graduation pics but again cant add pictures ! ARGH ! I will try again later ! And on the note of things that bug me .... I have when people dont RSVP !!! I am trying to do a get together for Roberts birthday/ thank you to those who helped with his heart attack and cant get people to respond if they are coming. Makes it hard to get food when you dont know how many are eating :)
I took Teresa on Saturday yo get her hair fix (still from the damagethis summer from her mom) and then sunday we did senior pics ! Kinda scarey to see her in a cap and gown.I gave her an early graduation present which was a silver necklace that has 3 rings (mother, daughter, friend) and the card that came with it said something like " a daughter is a little girl who grows up to be your friend" and then something about when you wear it remember what you mean to me. she started crying - it touched me that my necklace meant so much. I was hoping it would and I was glad it did.
We went to a picnic at the park this weekend with some friends ! It was so nice out and so relaxing - we never get to relax anymore. We definitly have to do it more often.
I tried to add some of Teresa's graduation pics but again cant add pictures ! ARGH ! I will try again later ! And on the note of things that bug me .... I have when people dont RSVP !!! I am trying to do a get together for Roberts birthday/ thank you to those who helped with his heart attack and cant get people to respond if they are coming. Makes it hard to get food when you dont know how many are eating :)
Thursday, April 16, 2009
You know you have a child with special needs when...
Not all of these apply to me but some do so it's pretty funny......
You know you have a child with special needs when...
by Carol AnCel
You compare ER's instead of grocery stores.
You compare your child's oxygen saturations.
You view toys as "therapy".
You don't take a new day for granted.
You teach your child HOW to pull things out of the cupboard, off the bookcases, and that feeding the dog from the table is fun.
The clothes your infant wore last fall still fit her this fall.
Everything is an educational opportunity instead of just having plain old fun.
You cheer instead of scold when they blow bubbles in their juice while sitting at the dinner table (that's speech therapy), smear ketchup all over their high chair (that's OT), or throw their toys (that's PT).
You also don't mind if your child goes through the house tooting a tin whistle.
You fired at least 3 pediatricians and can teach your family doctor a thing or two.
You can name at least 3 genes on chromosome 21. (You really know your toast if you can spell the full names correctly)
You have been told you are "in denial" by at least 3 medical or therapy professionals. This makes you laugh!
You have that incredible sinking feeling that you've forgotten SOMETHING on those few days that you don't have some sort of appointment somewhere!
You get irritated when friends with healthy kids complain about ONE sleepless night when they're child is ill!
Your vocabulary consists of all the letters OT, PT, SP, ASD, VSD, IFSP, etc.
You keep your appointment with the specialist even though a tropical storm is raging because you just want to get this one over with.....you waited 8 months to get it.....and besides, no one else will be there!
Fighting and wrestling with siblings is considered PT.
Speech therapy occurs in the tub with a sibling.
When potty training is complete, you take out a full page public notice in the Washington Post.
When the Doctors/Specialist/Hospitals etc. all know you by your name without referring to your chart.
You keep a daily growth chart.
You calculate monthly statistics for the number of times your child vomits, and did this for more then one year.
You phone all your friends when your child sits up for the first time, at age two.
With a big smile on your face you tell a stranger that your four year old just started walking last week.
Her medical file is several inches thick and growing.
You have a new belief.....that angels live with us on earth.
You know you have a child with special needs when...
by Carol AnCel
You compare ER's instead of grocery stores.
You compare your child's oxygen saturations.
You view toys as "therapy".
You don't take a new day for granted.
You teach your child HOW to pull things out of the cupboard, off the bookcases, and that feeding the dog from the table is fun.
The clothes your infant wore last fall still fit her this fall.
Everything is an educational opportunity instead of just having plain old fun.
You cheer instead of scold when they blow bubbles in their juice while sitting at the dinner table (that's speech therapy), smear ketchup all over their high chair (that's OT), or throw their toys (that's PT).
You also don't mind if your child goes through the house tooting a tin whistle.
You fired at least 3 pediatricians and can teach your family doctor a thing or two.
You can name at least 3 genes on chromosome 21. (You really know your toast if you can spell the full names correctly)
You have been told you are "in denial" by at least 3 medical or therapy professionals. This makes you laugh!
You have that incredible sinking feeling that you've forgotten SOMETHING on those few days that you don't have some sort of appointment somewhere!
You get irritated when friends with healthy kids complain about ONE sleepless night when they're child is ill!
Your vocabulary consists of all the letters OT, PT, SP, ASD, VSD, IFSP, etc.
You keep your appointment with the specialist even though a tropical storm is raging because you just want to get this one over with.....you waited 8 months to get it.....and besides, no one else will be there!
Fighting and wrestling with siblings is considered PT.
Speech therapy occurs in the tub with a sibling.
When potty training is complete, you take out a full page public notice in the Washington Post.
When the Doctors/Specialist/Hospitals etc. all know you by your name without referring to your chart.
You keep a daily growth chart.
You calculate monthly statistics for the number of times your child vomits, and did this for more then one year.
You phone all your friends when your child sits up for the first time, at age two.
With a big smile on your face you tell a stranger that your four year old just started walking last week.
Her medical file is several inches thick and growing.
You have a new belief.....that angels live with us on earth.
Wednesday, April 15, 2009
I'm loosing my sweet girl !
I am loosing my sweet girl and she is becoming that dreaded bad word...teenager. Or at this point, preteen ! She is getting sassy with a capitol S ! Last night I motioned to pop her mouth and she responded with "i'm not afraid to hit you" what !?! who says that to their mom ? When I mentioned telling Dad what she got upset and begged me not to, saying Dad is big and can squoosh her. Of course when I tried to tell dad he was too busy watching Dancing with the stars ! Yes, my husband watches that ! Also yesterday, I told the little boys she couldnt play so she wrote me a note that said "thank you for inbearsing me" Hooked on phonics works for her.. "in bear sing" but the rest of us spell it embarrassing. She is a great problem solver and spelling guesser and no- she did not do hooked on phonics.
I havent blogged in a while- things have been busy. My daycare was closed over easter so thursday we paid the nieghbor to come watch Kayden, Friday was a family effort and Teresa got her monday. She started eating some tablefoods and likes bread and mashed potatoes. She even ate an entire jar of carrots one night and jar of pears the next day but that was that was short lived cause now she would rather spit it back out ! And I do mean spit- some of it can go pretty far ! We have added PT once a week and she is still getting OT twice a week.
Teresa is doing really good. she gave me a very nice card on my birthday telling me how much she appreciates me. She is finally growing up ! We have been working on scholarship applications have one turned in and one going in tomorrow. On saturday we go to get her hair fix (still trying to recover from her mom coloring her hair this summer) and then sunday taking senior pics. Graduation invites have already come in and we need to start addressing them.
Robert is on light duty for 2 weeks and then goes back to work. this week is not a big deal cause he is in training. We went on 4/9 (my birthday) to the cardiologist and found out he has 4 more blackages (happy birthday to me) 2 are at 40%, one at 50%, and one at 70%. We are really watching his diet and trying to increase his exercise. We had been walking and will again soon- things are weird with my dad visiting. His birthday is next weekend so we are having a BBQ to celebrate he is still alive and to thank everyone who helped us during his heart attack. Robert spoke with the EMS guy to say thanks. the medic told him how happy he was to get Robert's message because he honestly didnt think Robert was going to make it ! the fireman had similar stories as well. I am SO glad I didnt know at the time how bad the situation was so I didnt freak out. I am just very glad it ended the way it did so I dont regret my actions. I keep playing the what if game. what if he didnt make it...should I have gone to the hospital right away ? should I have taken the kids? you know that horrible game ! I am just thankful that it ended the way it did and I dont regret worrying about the kids and letting the first repsonders take care of Robert !
As you can tell I am busy busy busy ! I had a nice birthday and my sister sent me money so Robert and I went for a couple massage. I am working with Teresa on her scholarships, graduation prep, senior pics, graduation party. We are plannning Caitlins birthday and our anniversary all in June ! WE decided to renew our vows and realized how important it is considering. After numerous ideas falling through, we decided to rent a party boat. I feel like I am planning a wedding all over again ! but not as big or as stressful !
I havent blogged in a while- things have been busy. My daycare was closed over easter so thursday we paid the nieghbor to come watch Kayden, Friday was a family effort and Teresa got her monday. She started eating some tablefoods and likes bread and mashed potatoes. She even ate an entire jar of carrots one night and jar of pears the next day but that was that was short lived cause now she would rather spit it back out ! And I do mean spit- some of it can go pretty far ! We have added PT once a week and she is still getting OT twice a week.
Teresa is doing really good. she gave me a very nice card on my birthday telling me how much she appreciates me. She is finally growing up ! We have been working on scholarship applications have one turned in and one going in tomorrow. On saturday we go to get her hair fix (still trying to recover from her mom coloring her hair this summer) and then sunday taking senior pics. Graduation invites have already come in and we need to start addressing them.
Robert is on light duty for 2 weeks and then goes back to work. this week is not a big deal cause he is in training. We went on 4/9 (my birthday) to the cardiologist and found out he has 4 more blackages (happy birthday to me) 2 are at 40%, one at 50%, and one at 70%. We are really watching his diet and trying to increase his exercise. We had been walking and will again soon- things are weird with my dad visiting. His birthday is next weekend so we are having a BBQ to celebrate he is still alive and to thank everyone who helped us during his heart attack. Robert spoke with the EMS guy to say thanks. the medic told him how happy he was to get Robert's message because he honestly didnt think Robert was going to make it ! the fireman had similar stories as well. I am SO glad I didnt know at the time how bad the situation was so I didnt freak out. I am just very glad it ended the way it did so I dont regret my actions. I keep playing the what if game. what if he didnt make it...should I have gone to the hospital right away ? should I have taken the kids? you know that horrible game ! I am just thankful that it ended the way it did and I dont regret worrying about the kids and letting the first repsonders take care of Robert !
As you can tell I am busy busy busy ! I had a nice birthday and my sister sent me money so Robert and I went for a couple massage. I am working with Teresa on her scholarships, graduation prep, senior pics, graduation party. We are plannning Caitlins birthday and our anniversary all in June ! WE decided to renew our vows and realized how important it is considering. After numerous ideas falling through, we decided to rent a party boat. I feel like I am planning a wedding all over again ! but not as big or as stressful !
Wednesday, April 8, 2009
Still alive
So I havent posted in a while. Things have been so crazy here and I have so much more on my plate after Robert's heart attack. We got evaluated for PT for Kayden and the PT was very excited with where Kayden was and how she is doing ! Almost made me cry ! She was surprised how well she was doing so soon after her heart surgery. It was nice to hear that she is doing good instead of she is lacking ! We are adding Pt so the OT can work on her eatting. She is normal and pushes the food out when you feed her. It takes us forever to get her to eat some and we get tired and frustrated. So I am loving the thought of an angel coming to get her to eat and taking that extra stress away from me ! Think we can get her to potty train too ????? Thinking positive !
Robert is doing well.It is hard to believe he had a heart attack a week ago. He is getting tired easily but we dont know if that is from the meds. He was supose to have cardiac rehab but the lady wont call him back to schedule it ! And you know guys- much more of a delay and he is going to say forget about it !
Caitlin is awesome ! Sleeping in her own bed and does not seem to be overly affected by robert's hospital stay. For those of you who dont know- I was hospitalized 2 years ago and after that Caitlin could not sleep by herself ! We had just recently gotten her to move back into her room so we were worried this would be a set back ! Looks like we weathered the storm okay on this one ! My very sweet and loving daughter planned a surprise birthday party for me last saturday. There was concern about doing it right after Robert's heart attack so I found out about it. She is so sweet and got my firend Melissa to help her. It was alot of fun and I have the best daughter in the whole world ! BTW- she cooked Robert and I dinner last night (her first time) making macaroni and cheese (it was not all the way cooked and was dry) but it was the best mac and cheese we ever ate !
Teresa is a tenager and now I see why my dad said the word teenager is a bad word ! I have been staying after her to do scholarships and of course she waits for the last minute. then when she goes to turn it in the teacher was out ! ARGH ! Then she was leaving for school yesterday with 2 shirts and a jacket and flip flops ! What happened to the rule NO FLIP FLOPS to school ?????? so I said she needed to put on real shoes ! (we have a long history of flip flops to school and having to take them away) she starts mouthing off. Her dad even tells her it is too cold for them and there goes the mouth and did not stop all the way to school ! Can she not stress out her dad a week after his heart attack over friggin flip flops ???? ARGH !!!!!!
So- my dad comes in tonight for 2 weeks (staying with me), my aunt comes in tonight too staying with my mom. Passover starts tonight, tomorrow is my birthdya, tomarrow is Robert's cardiology appt, and my day care is closed thursday- monday. always something.......
Robert is doing well.It is hard to believe he had a heart attack a week ago. He is getting tired easily but we dont know if that is from the meds. He was supose to have cardiac rehab but the lady wont call him back to schedule it ! And you know guys- much more of a delay and he is going to say forget about it !
Caitlin is awesome ! Sleeping in her own bed and does not seem to be overly affected by robert's hospital stay. For those of you who dont know- I was hospitalized 2 years ago and after that Caitlin could not sleep by herself ! We had just recently gotten her to move back into her room so we were worried this would be a set back ! Looks like we weathered the storm okay on this one ! My very sweet and loving daughter planned a surprise birthday party for me last saturday. There was concern about doing it right after Robert's heart attack so I found out about it. She is so sweet and got my firend Melissa to help her. It was alot of fun and I have the best daughter in the whole world ! BTW- she cooked Robert and I dinner last night (her first time) making macaroni and cheese (it was not all the way cooked and was dry) but it was the best mac and cheese we ever ate !
Teresa is a tenager and now I see why my dad said the word teenager is a bad word ! I have been staying after her to do scholarships and of course she waits for the last minute. then when she goes to turn it in the teacher was out ! ARGH ! Then she was leaving for school yesterday with 2 shirts and a jacket and flip flops ! What happened to the rule NO FLIP FLOPS to school ?????? so I said she needed to put on real shoes ! (we have a long history of flip flops to school and having to take them away) she starts mouthing off. Her dad even tells her it is too cold for them and there goes the mouth and did not stop all the way to school ! Can she not stress out her dad a week after his heart attack over friggin flip flops ???? ARGH !!!!!!
So- my dad comes in tonight for 2 weeks (staying with me), my aunt comes in tonight too staying with my mom. Passover starts tonight, tomorrow is my birthdya, tomarrow is Robert's cardiology appt, and my day care is closed thursday- monday. always something.......
Wednesday, April 1, 2009
Robert update
Saturday we were getting ready for Alicias wedding. I was putting curlers in Caitlins hair and robert started saying his chest was hurting. I asked him several times if I needed to call 911 and he finally said yes. He then went downstairs to wait for them and yelled up to bring him some socks. First to arrive was David J.- he walked in and looked at Rob and said "Man, you dont look good". Daryl came next follwed by the fire dept. They had to wait for a medic out of Austin because our medic was already on a call. Once they got there, they loaded him in the ambulance and took him to the hospital. The officers wanted me to go but the kids were really upset and I didnt feel like I could just leave them. Caitlin was upset the whole time and Teresa lost it when they loaded him on the streatcher. Which I think didnt go over very well with the officers. I had already called my mom and she was on the way. We had a quick family meeting about what Daddy would want us to do. I got everything ready for the kids and my mom to take them (car seat/ formula/ etc) got dressed and ran to the hospital. WhenI go there- Robert's chief was already there and stayed with me while Rob was in surgery. Another Sgt showed up too (Oscar).
Robert says that in the ambulance he wanted to got to sleep but them told him that if he went to sleep he wouldnt wake up. He had a 80 % block and a 100 % block in one artery and that 10 minutes later, he wouldnt be here. -Something I didnt realize or maybe I would have acted differently. I was in that mode that people go into after someone dies- where you have to take care of the funeral arrangments and everything else and it doesnt hit you till later. Having just gone through everything with Kayden, It felt routine- another hospital stay, another heart issue, etc, etc etc. It hit me when I called David K and I said "Robert had a heart attack" and he said "oh my god" then I heard it all at once "robert had a heart attack oh my god "
I got rob in his room and settled, ordered his dinner etc, and then he said for me to go to the wedding. So I did. Teresa had really stepped up to the plate and helped Caitlin get ready and helped my mom and took care of Kayden. after the wedding, I dropped Kayden with Lisa and took the girls to the hospital to see their dad.they made an exception and let Caitlin in to ICU- you have to be over 12. Once they girls saw him they were much better. Roberts Sgt partner, Larry, had stopped by too to check on him while we were at the wedding.
Sunday they had moved him out of ICU and he slowly started to have some visitors (Rick and Jill and Cathy and Rashwn, and David J stopped by- I think robert really scared him) Robert, David J and Oscar had all go to the police academy together. Monday they sent him home ! He is on a handful of drugs and he can not pick up more than 5 lbs which means he cant even pick up Kayden !
Everyone has been great. A neighbor, Jennifer and Kevin, brought us dinner on Sunday night, and Monday another officer, Mark, brought over food (and flowers for me), Tuesday Debbie and Randy brought over dinner and tonight my cousins are ordering us food. Some of the officers went to our rental house and repaired the fence robert was working on for him.
He really scared everyone- we have been told that half the department is quitting smoking and yesterday someone said "half the department was on the phone onmonday making Dr appts" Keba is getting everyone checked out all the way down to his toe nails (hee hee)
Yesterday I took him to the drs office and they did an EKG and echocardiogram- it does not appear there has been any damage to his heart but we will know for sure when the Dr reviews everything. He sees our family Dr on thursday and the heart Dr next week.
Well- that is it in a nutshell- without all the drama and emotions this ordeal had !
Robert says that in the ambulance he wanted to got to sleep but them told him that if he went to sleep he wouldnt wake up. He had a 80 % block and a 100 % block in one artery and that 10 minutes later, he wouldnt be here. -Something I didnt realize or maybe I would have acted differently. I was in that mode that people go into after someone dies- where you have to take care of the funeral arrangments and everything else and it doesnt hit you till later. Having just gone through everything with Kayden, It felt routine- another hospital stay, another heart issue, etc, etc etc. It hit me when I called David K and I said "Robert had a heart attack" and he said "oh my god" then I heard it all at once "robert had a heart attack oh my god "
I got rob in his room and settled, ordered his dinner etc, and then he said for me to go to the wedding. So I did. Teresa had really stepped up to the plate and helped Caitlin get ready and helped my mom and took care of Kayden. after the wedding, I dropped Kayden with Lisa and took the girls to the hospital to see their dad.they made an exception and let Caitlin in to ICU- you have to be over 12. Once they girls saw him they were much better. Roberts Sgt partner, Larry, had stopped by too to check on him while we were at the wedding.
Sunday they had moved him out of ICU and he slowly started to have some visitors (Rick and Jill and Cathy and Rashwn, and David J stopped by- I think robert really scared him) Robert, David J and Oscar had all go to the police academy together. Monday they sent him home ! He is on a handful of drugs and he can not pick up more than 5 lbs which means he cant even pick up Kayden !
Everyone has been great. A neighbor, Jennifer and Kevin, brought us dinner on Sunday night, and Monday another officer, Mark, brought over food (and flowers for me), Tuesday Debbie and Randy brought over dinner and tonight my cousins are ordering us food. Some of the officers went to our rental house and repaired the fence robert was working on for him.
He really scared everyone- we have been told that half the department is quitting smoking and yesterday someone said "half the department was on the phone onmonday making Dr appts" Keba is getting everyone checked out all the way down to his toe nails (hee hee)
Yesterday I took him to the drs office and they did an EKG and echocardiogram- it does not appear there has been any damage to his heart but we will know for sure when the Dr reviews everything. He sees our family Dr on thursday and the heart Dr next week.
Well- that is it in a nutshell- without all the drama and emotions this ordeal had !
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